Sunday 10 November 2013

HD Buzz

In any year you will hear about a cure which has been found or has advanced for a range of diseases and Huntington's is no different.  More often than not the claims are not backed by research and people, either with HD or their families are once again left disappointed.  the University of Leicester recently claimed in a recent study, 'could treat Alzheimer's, Parkinson's, Huntington's and other diseases. Unfortunately the hype of the press and the actual study are quite different.  HD Buzz website explains this.
  News provided by HDBuzz  www.hdbuzz.net
HD buzz is the first internet portal of high quality HD research  news to the global community. It is written in everyday language by HD clinicians and scientists.  It is funded by various Huntington's Association throughout the world including Huntington's Australia.  They do not accept funding from drug companies or companies which would benefit from research.  They clearly state they are impartial.
I spent a few hours getting to know the website and will visit there regularly for updates.  The recent HD World Congress videos and notes are also located on their site.  There is always hope, especially  when we have young people at risk;  the hope helps us to get out of bed each morning and motivates us in our journey each day.

 

No comments: