Tuesday 16 October 2018

A Banana Case

Like ants in their nest or bees in a swarm there are times when life gets out of kilter and nothing seems quite right.
One minute Merv in his care facility is going along as expected.  Staff are coming and going and Merv is doing as well as expected considering his HD.  Life is not what we had hoped but it is what it is.
Merv had his fall over three weeks ago, his foot still hurts, the gash on his head has healed and left a small scar.  I was feed up and emailed the deputy manager asking him to address some crucial questions concerning Merv's care.
Nothing much happened until a week later when a hive of activity began.  Staff wanted to know absolutely everything Merv was eating and drinking.   Records were being kept.  Merv has lost over 8 kilos since March.  Suddenly they appeared to be concerned.  This is not completely true, staff have been concerned adding a sustenance powder to his mealtime potato.  There has also been the occasional pudding supplement.
The Allied Health Team was contacted.  I thought of closing Merv's door (pity there is no lock) just to keep the hordes out.
Today's incident keeps replaying in my mind.  An unexpected incident; after filling up my coffee mug I returned to Merv's room to find the nurse chatting quietly to him.  She sat next to him saying he had lost a lot of weight and would he consider eating a banana later on for supper.  He had yet to have his lunch.  He mumbled he would.
The nurse came back with a large yellow banana and placed it on his tray in front of him.  She must have seen the expression on my face and asked if he could peel it and eat it like it was.
I didn't even bother to tell her Merv has dysphasia, surely she would know?  I suggested the banana should be mashed and mixed with either custard or yoghurt.  "Oh," she said as she retrieved the banana exiting the room.  We didn't see the banana again (or the nurse).
I have a meeting with the deputy manager on Thursday along with the Allied Health Team.  It promises to be interesting.


Image result for picture banana


Tuesday 9 October 2018

Within A Month

It's been a busy month.  Merv fell out of his chair almost three weeks ago gashing the right side of his head and rolling on his right foot.  He has an expected broken bone or two in his foot.  I spent most of the morning crying.  I had arrived late only to find the nurse stating she had contacted me.  I challenged her on this.  My new iPhone records all ingoing and outgoing calls; there was no evidence of her call. It was three hours after his fall he told me his foot hurt.  I removed his shoe and sock to find his foot swollen like a melon.  The staff had checked him for further injury  More tears.  It was a frightful day.  His head wound has almost healed completely but his foot is still a bug-bear for him.  He is having panadol daily.
Merv fell out of his chair due to his excessive movement increasing almost daily.  A month later he is on all sorts of drugs.  He defies the odds by continuing to surprise us with bouts of excessive movements.
Just by talking to those in the know I learnt in the last month people with HD become easily overwhelmed outside their comfort zone.
Merv who not so long ago enjoyed nothing better than a big crowd of people, lots of noise and taking his time has turned the tables by reversing all of the above.
I'm getting to know and understand a little better this other personality of Merv's.  I'm trying and it is very trying.