Is Harry just looking on, maybe from a cloud above knowing he is causing trouble? Mel came down with a sore throat and came to stay with us for 4 days and nights. I emptied my cupboards stock piling various sore throat medicines and lozenges and commenced a timetable of what she had, when she had it and when she should have it next. Hospital ward once again. I should have been a nurse.
Her sore throat disappeared in a couple of days but she couldn't utter a word without screeching like a frightened parrot in a thunder storm. Days later it wasn't any better even though we had increased the plausible remedies and even added some prayers.
Eventually Mel returned home. Mel has been asthmatic since she was 19 months and has been in hospital well over 40 times. She was in Intensive Care twice when she was 8 years old and we almost lost her. Last year she was admitted to the local hospital for 2 days with asthma. When she was discharged she came to live with me for a week before going home.
Mel shares a modern unit in a supportive accommodation site with her housemate who smokes regularly outside on the patio. Mel's housemate leaves the sliding door open each time and the unit fills with the chilly air from outside. I asked her nicely if she would close the door behind her and she said she would. It didn't work, not even once. I wrote a note and stuck it on the door with blu-tac. She removed it. I made a sign on my computer and put cute little flowers under the words, "Please Close the Door, Mel has asthma" I laminated it, it looked so nice and I put it on the door. She took it down and left the door open again!
I emailed the newly appointed supervisor who emailed me back and said she understands, she also has asthma and will speak to the housemate. She did but it didn't work. Today I visited Mel's unit and the sliding door was wide open and my flowered laminated note torn off the door and discarded.
I just want Mel to be well and warm but I am fighting a battle which I didn't see coming.
I will try another email and hopefully a face to face visit with the supervisor in the next few days. I only want what is best for Mel, she has a lot to deal with. I feel Harry is having a chuckle.
Sunday 30 June 2013
Saturday 29 June 2013
What Works and Why?
A glorious day in Perth today. We went to Whiteman's Park this afternoon about 2:30pm. It was the same time as we reached our maximum temperature of 23 degrees. A taste of Spring in the air and not a breath of wind to douse the picture. It has been such a busy week finishing today with my last of 4 Creative Writing classes with author Helen Ilnes. I fell into a peaceful slumber tonight and missed most of Tomic doing battle at Wimbledon.
This morning during class I was told writing my story long hand, yes with a pen or a pencil on paper just like we did during our school days is the best way. What? I see myself sitting at my computer and my nimble fingers dancing over the keys, barely touching while bringing to life the words on the screen before me. Long hand, on paper, with a pen? I repeat this over in my mind. Surely not, it sounds absurd. I love the computer, it is so neat, no messy scribbling, no crossing out or funny arrow heads all over the page. Hmm the paper page not the computer screen. I am dizzy with disbelief.
I listen to the reason and it is simple. As we look down at a page we concentrate and (what I am told) focus on the task at hand, while on the screen our mind just scans what is written and does not engage the same. Upon reflection maybe this has more credibility upon the editing of our work rather than the typing of the words. I do not know. Maybe I could try it out by writing the story beginning on paper and a separate beginning on the computer and see which one reads better. It is just an idea.
I will let you know the result of my trial.
This morning during class I was told writing my story long hand, yes with a pen or a pencil on paper just like we did during our school days is the best way. What? I see myself sitting at my computer and my nimble fingers dancing over the keys, barely touching while bringing to life the words on the screen before me. Long hand, on paper, with a pen? I repeat this over in my mind. Surely not, it sounds absurd. I love the computer, it is so neat, no messy scribbling, no crossing out or funny arrow heads all over the page. Hmm the paper page not the computer screen. I am dizzy with disbelief.
I listen to the reason and it is simple. As we look down at a page we concentrate and (what I am told) focus on the task at hand, while on the screen our mind just scans what is written and does not engage the same. Upon reflection maybe this has more credibility upon the editing of our work rather than the typing of the words. I do not know. Maybe I could try it out by writing the story beginning on paper and a separate beginning on the computer and see which one reads better. It is just an idea.
I will let you know the result of my trial.
Wednesday 26 June 2013
My Birthday
Tomorrow, June 27th is my birthday. I didn't get to chose the day. If I had, I would have chosen a day in mid March or maybe October. Either of these times is almost a guarantee of a balmy warm day. June is cold and wet. Last year the sun came out to celebrate and again it is promised for tomorrow. Alas I have many memories of my school years ducking the showers and jumping puddles on my birthday. It even rained on my 21st. Such joy to have sunshine all day.
I don't remember too much of any birthday before I married. I lie, I remember my 13th birthday in 1970 when I had my first party which was a reflection of the era - a hippie party. I loved it.
All those other birthdays I remember receiving a card and a $1 note (yes, a brown coloured note with pictures of Aboriginal drawings, hmmm I am older than I think) Nanny from the UK would also send a card and 10 shillings; the equivalent of $1 AUD. Her note always said to buy myself an ice cream with it. I am sure I bought plastic jewellery from Coles in the city, when such a store existed. I remember buying the plastic baubles with a metal chain at a cost of 20c!
Merv on the other hand could not have a birthday without ensuring it was a day of high remembrance. His family, his father rather than his mother came from a birthday celebrating tradition. Every child and grandchild were visited for their special day and a made a fuss of. There were always presents (not a card and a $1), cake, lots of people and a jolly good time. It was always about family. I liked this idea and I adopted it and made it our own. Cake, photos, parties, people and of course presents (never money). The tradition continues. Dustin was away in the US for one birthday and we rang him on the mobile and still went out and celebrated his day later when he returned. Mel spends months planning and re-planning what she is going to do, who she will invite and often how many celebrations she will have. There are always at least 2 if not 3. Family and then an array of friends to celebrate with. Gifts, cake and more food, but the people are the most important.
Dustin was horrified to find I did not have a planned 21st birthday party. I stayed at home and people arrived; my friend from high school Jane, Susan, Roger and kids, Vicki, Russell and kids and Merv's Great Auntie had given Merv a cake she had made for my special day (she also made our wedding cake). We had a great time. Merv of course was thrown a 21st by his parents at the Pagoda Ballroom in South Perth. We married when he was 22.
For my 30th birthday Merv and I spent a weekend in Geraldton, mainly because I had never been there. I've never been back, but I did enjoy the weekend and the drive there and back. We took the inland road on the way back and witnessed what looked like a huge wolf sauntering through the bush. The wheat silos were interesting to see. For my 40th birthday I celebrated with family with breakfast at the Rose and Crown Hotel in Guildford. I don't remember what else I did that day.
My 50th was a family cruise to the South Pacific from Sydney. A great time except Mel was constantly sea sick.
Tomorrow I am meeting my sister Susan at the Dome with Mel for an early morning tea before taking the train to Perth. We have a lunch reservation at Jamie Oliver's restaurant in William Street. A little shopping, a bit of fun and back home to watch the Eagles (yes on a Thursday night) play Essendon at Patterson Stadium (Subi). It will be a good day, there will people, presents, (no cake), celebrations and the sun will shine.
I don't remember too much of any birthday before I married. I lie, I remember my 13th birthday in 1970 when I had my first party which was a reflection of the era - a hippie party. I loved it.
All those other birthdays I remember receiving a card and a $1 note (yes, a brown coloured note with pictures of Aboriginal drawings, hmmm I am older than I think) Nanny from the UK would also send a card and 10 shillings; the equivalent of $1 AUD. Her note always said to buy myself an ice cream with it. I am sure I bought plastic jewellery from Coles in the city, when such a store existed. I remember buying the plastic baubles with a metal chain at a cost of 20c!
Merv on the other hand could not have a birthday without ensuring it was a day of high remembrance. His family, his father rather than his mother came from a birthday celebrating tradition. Every child and grandchild were visited for their special day and a made a fuss of. There were always presents (not a card and a $1), cake, lots of people and a jolly good time. It was always about family. I liked this idea and I adopted it and made it our own. Cake, photos, parties, people and of course presents (never money). The tradition continues. Dustin was away in the US for one birthday and we rang him on the mobile and still went out and celebrated his day later when he returned. Mel spends months planning and re-planning what she is going to do, who she will invite and often how many celebrations she will have. There are always at least 2 if not 3. Family and then an array of friends to celebrate with. Gifts, cake and more food, but the people are the most important.
Dustin was horrified to find I did not have a planned 21st birthday party. I stayed at home and people arrived; my friend from high school Jane, Susan, Roger and kids, Vicki, Russell and kids and Merv's Great Auntie had given Merv a cake she had made for my special day (she also made our wedding cake). We had a great time. Merv of course was thrown a 21st by his parents at the Pagoda Ballroom in South Perth. We married when he was 22.
For my 30th birthday Merv and I spent a weekend in Geraldton, mainly because I had never been there. I've never been back, but I did enjoy the weekend and the drive there and back. We took the inland road on the way back and witnessed what looked like a huge wolf sauntering through the bush. The wheat silos were interesting to see. For my 40th birthday I celebrated with family with breakfast at the Rose and Crown Hotel in Guildford. I don't remember what else I did that day.
My 50th was a family cruise to the South Pacific from Sydney. A great time except Mel was constantly sea sick.
Tomorrow I am meeting my sister Susan at the Dome with Mel for an early morning tea before taking the train to Perth. We have a lunch reservation at Jamie Oliver's restaurant in William Street. A little shopping, a bit of fun and back home to watch the Eagles (yes on a Thursday night) play Essendon at Patterson Stadium (Subi). It will be a good day, there will people, presents, (no cake), celebrations and the sun will shine.
Tuesday 25 June 2013
Wimbledon
Wimbledon a picture parade of elite players, rousing audiences, and commentary of worldwide proportions once again entertains us long into the Australian night. I can sit mesmerised for hours, my head going left and then right and my uttering of oh, wow, hmmm, yes plus other utterances never before have I vocalised.
Nadal who recently won the French Open was out in the first round. I had to go to bed before he succumbed to his opponent's hand. I had sat rigid in my chair as long as I could; willing him to win, to have a go, to break loose, to go the extra mile, whatever it would take. The following day loomed ahead and sleep was what was calling me. I succumbed.
When I woke this morning I went straight to the computer to find as expected he had been beaten by his opponent. Nadal being 5th in the world of tennis and the opponent 35. I wondered how he deals with the expectation of winning only to find the reality of loss enveloping him. Maybe he sometimes says, Í should just get a day job and work 9-5 or maybe become a tennis coach or personal trainer (lots of them around lately). At least the work would be regular and the pain of losing without a fight would be more of a hum drum existence.
In hindsight the magic of Wimbledon captivates the thrill of the chase, the adrenaline which changes Clark into Superman, The goal to achieve outweighs the need for job security.
It is the brave, the trailblazers who side step the 9-5 jobs to risk everything for the limelight and to compete and win at their craft.
Nadal will be back. Nadal will win once again.
Nadal who recently won the French Open was out in the first round. I had to go to bed before he succumbed to his opponent's hand. I had sat rigid in my chair as long as I could; willing him to win, to have a go, to break loose, to go the extra mile, whatever it would take. The following day loomed ahead and sleep was what was calling me. I succumbed.
When I woke this morning I went straight to the computer to find as expected he had been beaten by his opponent. Nadal being 5th in the world of tennis and the opponent 35. I wondered how he deals with the expectation of winning only to find the reality of loss enveloping him. Maybe he sometimes says, Í should just get a day job and work 9-5 or maybe become a tennis coach or personal trainer (lots of them around lately). At least the work would be regular and the pain of losing without a fight would be more of a hum drum existence.
In hindsight the magic of Wimbledon captivates the thrill of the chase, the adrenaline which changes Clark into Superman, The goal to achieve outweighs the need for job security.
It is the brave, the trailblazers who side step the 9-5 jobs to risk everything for the limelight and to compete and win at their craft.
Nadal will be back. Nadal will win once again.
Sunday 23 June 2013
Harry is Restless
Mel made a statement late this afternoon which upon reflection she was quite correct. We had gone to the Everywoman's Expo on Friday and she was adamant she would buy a fanciful veggie peeler/shredder for $10 each, buy 2 and get 1 free.
Mel's energy had returned on Saturday afternoon and I suggested she peel the sweet potato for dinner. While I busied myself with mundane domestic doings Mel put peeler and vegetable together and was pleased her peeler jumped to attention and performed just the way it had been demonstrated.
Her voice suddenly weakened and screeched. I turned to look and she stood motionless holding up her finger with a river of red pouring from it.
Like a robot I put a couple of tissues around her finger to stem the blood and rushed off to retrieve the 1st aid box and band aids. All done in a minute. Hmmm may have to give that peeler away to another home.
After she retired to the couch and she suffered a little after shock Mel simply said, 'I have a lot to deal with; my cough (ongoing asthma), my finger, my weight, my schizophrenia and now the HD gene. What could I do, what could I say, it is all true. I put my arms around her and enveloped her in a mummy, daughter hug. There are many benefits of being a Mum.
Mel's energy had returned on Saturday afternoon and I suggested she peel the sweet potato for dinner. While I busied myself with mundane domestic doings Mel put peeler and vegetable together and was pleased her peeler jumped to attention and performed just the way it had been demonstrated.
Her voice suddenly weakened and screeched. I turned to look and she stood motionless holding up her finger with a river of red pouring from it.
Like a robot I put a couple of tissues around her finger to stem the blood and rushed off to retrieve the 1st aid box and band aids. All done in a minute. Hmmm may have to give that peeler away to another home.
After she retired to the couch and she suffered a little after shock Mel simply said, 'I have a lot to deal with; my cough (ongoing asthma), my finger, my weight, my schizophrenia and now the HD gene. What could I do, what could I say, it is all true. I put my arms around her and enveloped her in a mummy, daughter hug. There are many benefits of being a Mum.
Saturday 22 June 2013
My Leaky Roof
Its that time of the year. Perth has gloriously warm winter days. Days that other places could not own as winter. Some places in the world would take our warm winter days and make them their autumn or spring days. Some places would make them their summer days! We laugh. We love our warm and sunny days. The song that states,'it never rains in southern California, it pours!' Perth is a lot like that. The rain comes down in bucketful's, like there aren't enough containers in heaven to pour it out upon us. Yes, God has the hose on full pelt, it sure does pour right here.
In 2010 we were tortured with golf size hail stones during a 5pm storm. The damage was extensive and everyone had a story to tell, whether it was their own or belonged to a relative, friend or colleague. As a community services assessor at the time I heard many stories and saw the damage the freak storm delivered.
We have had a small leak from our roof for sometime. When it rains as rain should fall, straight down that is, we are safe and dry but when the wind howls and the rain comes down anyway but straight our roof develops, much to our horror, a constant drip through our passage way vent. I even put a cake pan underneath it when we holidayed in Mandurah to prevent our new carpet from getting soaked.
It is time to get the leaky roof fixed and concentrate on other things which Harry brings our way. I would like to expect a deluge of would be roof fixer uppers once I put my request to the local market. If I ask to get my gutters fixed at the same time, I may get a few enquiries, but no one is interested in fixing a single leak when a bigger job is lurking around the corner.
In 2010 we were tortured with golf size hail stones during a 5pm storm. The damage was extensive and everyone had a story to tell, whether it was their own or belonged to a relative, friend or colleague. As a community services assessor at the time I heard many stories and saw the damage the freak storm delivered.
We have had a small leak from our roof for sometime. When it rains as rain should fall, straight down that is, we are safe and dry but when the wind howls and the rain comes down anyway but straight our roof develops, much to our horror, a constant drip through our passage way vent. I even put a cake pan underneath it when we holidayed in Mandurah to prevent our new carpet from getting soaked.
It is time to get the leaky roof fixed and concentrate on other things which Harry brings our way. I would like to expect a deluge of would be roof fixer uppers once I put my request to the local market. If I ask to get my gutters fixed at the same time, I may get a few enquiries, but no one is interested in fixing a single leak when a bigger job is lurking around the corner.
Thursday 20 June 2013
Growing Pains in Perth
I was feeling quite anxious, I don't know why. There was no reason for it. I was heading off to the Niche to join my first official carer's support group. I made coffee to sip while waiting at the lights, I took my Pink Lady apple to munch at those extra long lights. Most lights seem extra long these days. I don't know why.
Off I went and everything was going well, apple slowly being munched away to the core and the coffee revitalising me after my early morning hours were spent running at full speed. Then I got stuck in traffic. Not just a little traffic but the type where you sit for 15 minutes and move 1 car length forward. The lights changed 10 times and I still hadn't moved. My coffee was gone, my apple just a browning core, my patience long gone. The meeting was at 10am and I had left at 9:15. It was now 10:10. Should I just go home?
As I reached the intersection of Wellington Street and Loftus I could see the road gang were out and had closed the left lane, yes of course I was in the left lane! There are no back streets in the CBD but I found them anyway. I followed the car in front turning left here and right there and efficiently weaved myself up to Kings Park Road. Very clever I thought. I made it to the meeting at 10:30am but I wasn't the only one stuck in traffic.
Guest speaker was Veronica from ILC North. I know Veronica from working as a ILC Assessor for services in 2011. She visited with her manager and we had fun while exploring the reasons and possibilities for respite. Yes, everything has a reason. I was meant to be there and I am looking forward to the meeting next month.
Off I went and everything was going well, apple slowly being munched away to the core and the coffee revitalising me after my early morning hours were spent running at full speed. Then I got stuck in traffic. Not just a little traffic but the type where you sit for 15 minutes and move 1 car length forward. The lights changed 10 times and I still hadn't moved. My coffee was gone, my apple just a browning core, my patience long gone. The meeting was at 10am and I had left at 9:15. It was now 10:10. Should I just go home?
As I reached the intersection of Wellington Street and Loftus I could see the road gang were out and had closed the left lane, yes of course I was in the left lane! There are no back streets in the CBD but I found them anyway. I followed the car in front turning left here and right there and efficiently weaved myself up to Kings Park Road. Very clever I thought. I made it to the meeting at 10:30am but I wasn't the only one stuck in traffic.
Guest speaker was Veronica from ILC North. I know Veronica from working as a ILC Assessor for services in 2011. She visited with her manager and we had fun while exploring the reasons and possibilities for respite. Yes, everything has a reason. I was meant to be there and I am looking forward to the meeting next month.
Wednesday 19 June 2013
Just One of Those Days!
We all have them. Days which we should have stayed in bed, pulled the covers up and hibernated until the sun arises once again in the east.
My day started of just fine. I had my hair trimmed and the new hairdresser also enjoys writing stories and poems. She has just lost 15kgs and I shared my journey of losing 12kgs with her. We warmed to each other. It was nice.
I rushed off to do a little shopping and came home to make pod coffee and wow look at the time I am running late for my creative writing class at college. I rushed out the door and 10 out of the 12 traffic lights not only were red, but they had just turned from amber to red. Deep breathing began.
Arrived at my class 15 minutes late, not like me at all. The class went alright except my mobile phone had completely shut down and the room clock stopped at 11:45am and the tutor noticed at 12:15pm! The class runs from 11am - 1pm.
I had a good idea. I took myself off to the college library and started on my Saturday writing homework. I was looking around for a power point and there was one right next to me popping up just above a metal book shelf. I plugged in my iphone and after a few minutes it sprang back to life. Too easy? I went to pull out the plug and the shelf was in the way. I disconnected the mobile and then took to removing the plug and cord. Yes, there I was banging away at the shelf in the very quiet and lonely library. After removing the shelf (yes, that's right I removed the shelf) and replaced it so it had an interesting slant.....I pretended all the eyes upon me were looking at someone else. As I left the library I could hear the sighs of relief but I still had the gall to ask how I could join the library!
Once outside Mel rings and says her Smart Rider is out of the money, so I suggest she ring Transperth and ask why her money has not yet been transferred to her new card. oh dear. Three phone calls later and the more plugging in of the iphone into the car charger I ring Transperth and find out her credit has just gone through.
Within minutes Merv's carer rings and says Merv didn't have his key for the house. Oh goodness, I had forgotten to give it to him this morning. I can hear myself groan. Fortunately we have a, 'locked box,' next to the front door which contains the keys. Roger was a ray of sunlight and managed to open the locked box and retrieve the keys. I stayed on the phone as he tried the keys and finally he said he had won and was in the house. Thank goodness!
Time for coffee and I headed for the college café to try their barista coffee. A man approached me as I entered and said the café had just closed but I could have coffee from the vending machine. Oh goodness, I wasn't going to stay to find out how awful it is. I took a trip to Muzz Buzz on Wanneroo Road and spent $4.80 for a regular size skinny flat white. Better tasting than vendor coffee but not worth the cost.
The rest of the day happened without a hitch. Next Wednesday I will ensure I arrive at class early!
My day started of just fine. I had my hair trimmed and the new hairdresser also enjoys writing stories and poems. She has just lost 15kgs and I shared my journey of losing 12kgs with her. We warmed to each other. It was nice.
I rushed off to do a little shopping and came home to make pod coffee and wow look at the time I am running late for my creative writing class at college. I rushed out the door and 10 out of the 12 traffic lights not only were red, but they had just turned from amber to red. Deep breathing began.
Arrived at my class 15 minutes late, not like me at all. The class went alright except my mobile phone had completely shut down and the room clock stopped at 11:45am and the tutor noticed at 12:15pm! The class runs from 11am - 1pm.
I had a good idea. I took myself off to the college library and started on my Saturday writing homework. I was looking around for a power point and there was one right next to me popping up just above a metal book shelf. I plugged in my iphone and after a few minutes it sprang back to life. Too easy? I went to pull out the plug and the shelf was in the way. I disconnected the mobile and then took to removing the plug and cord. Yes, there I was banging away at the shelf in the very quiet and lonely library. After removing the shelf (yes, that's right I removed the shelf) and replaced it so it had an interesting slant.....I pretended all the eyes upon me were looking at someone else. As I left the library I could hear the sighs of relief but I still had the gall to ask how I could join the library!
Once outside Mel rings and says her Smart Rider is out of the money, so I suggest she ring Transperth and ask why her money has not yet been transferred to her new card. oh dear. Three phone calls later and the more plugging in of the iphone into the car charger I ring Transperth and find out her credit has just gone through.
Within minutes Merv's carer rings and says Merv didn't have his key for the house. Oh goodness, I had forgotten to give it to him this morning. I can hear myself groan. Fortunately we have a, 'locked box,' next to the front door which contains the keys. Roger was a ray of sunlight and managed to open the locked box and retrieve the keys. I stayed on the phone as he tried the keys and finally he said he had won and was in the house. Thank goodness!
Time for coffee and I headed for the college café to try their barista coffee. A man approached me as I entered and said the café had just closed but I could have coffee from the vending machine. Oh goodness, I wasn't going to stay to find out how awful it is. I took a trip to Muzz Buzz on Wanneroo Road and spent $4.80 for a regular size skinny flat white. Better tasting than vendor coffee but not worth the cost.
The rest of the day happened without a hitch. Next Wednesday I will ensure I arrive at class early!
Tuesday 18 June 2013
Reminiscing
We didn't climb a mountain or make important life changing decisions but when we said goodbye today everyone was feeling on top of the world. What did we do? We just got together and remembered old times. We recounted old stories, many of them told countless times before. We remembered people we once knew and how they affected our lives Sometimes we were able to add a little more recent news. Yes that couple has children now, oh dear the other couple are divorced, that person is now living in ...... And so it went on.
It was the memories which ignited our endorphins, filling us with warm fuzzy candy popping moments. Even Merv joined in as the memories were revisited.
And who were our visitors? A fellow church goer from over 15 years ago and his more recent wife. I left this church in 2001 and Merv left in 2010 when he became ill. Our visitors had left the church before 2000 and returned in 2006 and are now the backbone of the congregation. They married in their later years and work as one together. They are an inspiration to us and to others.
It was the memories which ignited our endorphins, filling us with warm fuzzy candy popping moments. Even Merv joined in as the memories were revisited.
And who were our visitors? A fellow church goer from over 15 years ago and his more recent wife. I left this church in 2001 and Merv left in 2010 when he became ill. Our visitors had left the church before 2000 and returned in 2006 and are now the backbone of the congregation. They married in their later years and work as one together. They are an inspiration to us and to others.
Monday 17 June 2013
Missing Links
Chilly today but managed a walk together by the Swan River. Our roof leaks when the rain and the wind join together. I think it is the flashing around the air conditioner, but I'm no roof plumber. Steady rain, no wind is no problem.
I rang the bloke today who painted our roof in 2009. He did an excellent job. Just like the commercial on TV, I have been spotted staring adoringly at my orange roof, there are no more faded patches. Just all over orange and quite mesmerising when staring for any length of time!
I rang his mobile number and a voice coldly announced the number was disconnected. "Oh" I said. That was that. I had imagined he would say my roof was just as perfect as it was when he sprayed it in 2009. Of course he spent time cementing the capping and replacing broken roof tiles. We spent our 'Stimulus Money' given out by the Rudd government in 2009 on our roof project. I think it was $900 per taxpayer. We kept the money in WA by adorning our roof with it! Yes our investment in Australia is our roof, not an eyesore but a perfectly painted orange statement.
So where is the roof plumber who will never stare at my roof again and agree with me how good it still looks? Did he change his profession like I did in 2004? Did he retire like I did 3 months ago? Has he moved interstate or even overseas? Maybe he is caring for a loved one or what I don't want to think about, maybe he is ill or no longer lives?
Life will continue on and this day will soon blur into many more. Sadly I will never know his story, but I will continue making mine.
I rang the bloke today who painted our roof in 2009. He did an excellent job. Just like the commercial on TV, I have been spotted staring adoringly at my orange roof, there are no more faded patches. Just all over orange and quite mesmerising when staring for any length of time!
I rang his mobile number and a voice coldly announced the number was disconnected. "Oh" I said. That was that. I had imagined he would say my roof was just as perfect as it was when he sprayed it in 2009. Of course he spent time cementing the capping and replacing broken roof tiles. We spent our 'Stimulus Money' given out by the Rudd government in 2009 on our roof project. I think it was $900 per taxpayer. We kept the money in WA by adorning our roof with it! Yes our investment in Australia is our roof, not an eyesore but a perfectly painted orange statement.
So where is the roof plumber who will never stare at my roof again and agree with me how good it still looks? Did he change his profession like I did in 2004? Did he retire like I did 3 months ago? Has he moved interstate or even overseas? Maybe he is caring for a loved one or what I don't want to think about, maybe he is ill or no longer lives?
Life will continue on and this day will soon blur into many more. Sadly I will never know his story, but I will continue making mine.
Sunday 16 June 2013
Friends, Family & Foe
The sun shone today and the washing hung on the line drying with the aid of a slight breeze. It was so warm we enjoyed lunch under the patio and played some board games and dozed while pretending to read the paper.
Later in the afternoon as we sat and caught up with our weekly TV our friends rang and asked if they can visit Tuesday afternoon. During the last 3 years while I worked, our friends faithfully arrived each 2nd Thursday at 3:30pm until 5pm when I returned home. Another volunteer happily came on the alternative week. After I retired they have visited a few times and rang many more. They even arranged for a relative to cut down our 30 year bangalow palm which had decided life was too hard and gave up the ghost. I think it was just too thirsty.
How amazing some people are. We have been blessed with these friends and with our son and daughter, my sister and my mum.
We don't hear from the rest of the siblings, or the many friends who said they would call and never have. My dear friend from church suddenly became very distant when Merv became ill in 2010. We had known her for 20 years and had a wonderful friendship. In 2010, she sent us a Christmas card which read, "Merry Christmas and a Happy New Year, best wishes from ......" I threw the card away. I dug through the previous years' cards and found her Christmas card from 2009. It was filled with warm and fuzzy feelings from her to us.
My neighbour has a good heart and has found herself 'stuck' with all types of charity cases. 20 years ago she befriended a woman who had Huntington's Disease and my neighbour would recount her relationship with her, which had many pitfalls.
When Merv received his HD diagnosis we waited 6 months before telling our kids. I don't remember when I told my neighbour and I remember she didn't say much but I do remember she stepped backwards. They say body language tells as much more than verbal language.
I sometimes wonder if it just me. I know I am protective towards Merv. Unfortunately after talking to other women who have a husband, child, parent with a disability the story is often the same for them. I wonder if the new National Disability Insurance Scheme (NDIS) will help people to feel more confident with people with disabilities.
Later in the afternoon as we sat and caught up with our weekly TV our friends rang and asked if they can visit Tuesday afternoon. During the last 3 years while I worked, our friends faithfully arrived each 2nd Thursday at 3:30pm until 5pm when I returned home. Another volunteer happily came on the alternative week. After I retired they have visited a few times and rang many more. They even arranged for a relative to cut down our 30 year bangalow palm which had decided life was too hard and gave up the ghost. I think it was just too thirsty.
How amazing some people are. We have been blessed with these friends and with our son and daughter, my sister and my mum.
We don't hear from the rest of the siblings, or the many friends who said they would call and never have. My dear friend from church suddenly became very distant when Merv became ill in 2010. We had known her for 20 years and had a wonderful friendship. In 2010, she sent us a Christmas card which read, "Merry Christmas and a Happy New Year, best wishes from ......" I threw the card away. I dug through the previous years' cards and found her Christmas card from 2009. It was filled with warm and fuzzy feelings from her to us.
My neighbour has a good heart and has found herself 'stuck' with all types of charity cases. 20 years ago she befriended a woman who had Huntington's Disease and my neighbour would recount her relationship with her, which had many pitfalls.
When Merv received his HD diagnosis we waited 6 months before telling our kids. I don't remember when I told my neighbour and I remember she didn't say much but I do remember she stepped backwards. They say body language tells as much more than verbal language.
I sometimes wonder if it just me. I know I am protective towards Merv. Unfortunately after talking to other women who have a husband, child, parent with a disability the story is often the same for them. I wonder if the new National Disability Insurance Scheme (NDIS) will help people to feel more confident with people with disabilities.
Saturday 15 June 2013
Sleeping Harry
Today I went to class and one of my fellow students stated she was too busy to do her homework, she said she works in finance and it's almost the end of the financial year. We all nodded and extended silent sympathy and carried on with our exploration of homework endeavours.
This week gone we were holidaying and I immersed myself in just letting go. The days started slipping by and I wanted to hold onto what we had. I didn't care that Alex Electrolux didn't make the journey with us, or my bed was half the size of the mine at home. I remember before we went to Italy in 2008 I was told to spend time to 'smell the roses', and that is exactly what I did as I did last week. Sometimes we are so busy doing we forget to experience the here and now. The experience of body and soul in our new surrounding shared with others brings ultimate enjoyment. Oh how good this is for my wholeness.
The memories will last for awhile before Harry stirs from his sleep and starts the barrage of pain he is known to bring. I am going to make it my job to find out a bit more about Harry so I can play him at his own game. I was born to fight and not lose.
This week gone we were holidaying and I immersed myself in just letting go. The days started slipping by and I wanted to hold onto what we had. I didn't care that Alex Electrolux didn't make the journey with us, or my bed was half the size of the mine at home. I remember before we went to Italy in 2008 I was told to spend time to 'smell the roses', and that is exactly what I did as I did last week. Sometimes we are so busy doing we forget to experience the here and now. The experience of body and soul in our new surrounding shared with others brings ultimate enjoyment. Oh how good this is for my wholeness.
The memories will last for awhile before Harry stirs from his sleep and starts the barrage of pain he is known to bring. I am going to make it my job to find out a bit more about Harry so I can play him at his own game. I was born to fight and not lose.
Tuesday 11 June 2013
Got it
Sometimes it only takes one thing, a thought, a moment in time, a retort, a question or an answer. Today that I s what happened. It was a thought while I was sitting expectantly in the Reading cinema in Mandurah. We bought our movie tickets early, 3 hours before it started just in case there was a line. We visited the information centre afterwards, enjoyed seafood and fish and chips (no chips for Mel and me) at Cicerellos on the foreshore. A stroll down the foreshore to Pinjarra Road and a visit to the unknown Mandurah Museum. I loved the old telephone on the wall, the type you see on Greenacres. There was a huge pair of bellows and 3 prison cells, most confronting.
A quiet stroll down past the shops on Mandurah Terrace with a stop over at the souvenir shop. Mel bought a tea towel for Louise and Eric and a warm hat for Emily. We bought coasters for our table and are using them in our holiday unit. A takeaway coffee and off to see Leonardo strut his stuff. That was when it happened. The ideas I was entertaining about my future novel dashed out of the door without any warning. Poof, all gone. Replaced by wild and whimsical ideas of dizzy heights, but possibilities which could rear themselves from under the carpet and work their magic. We will wait and see.
A quiet stroll down past the shops on Mandurah Terrace with a stop over at the souvenir shop. Mel bought a tea towel for Louise and Eric and a warm hat for Emily. We bought coasters for our table and are using them in our holiday unit. A takeaway coffee and off to see Leonardo strut his stuff. That was when it happened. The ideas I was entertaining about my future novel dashed out of the door without any warning. Poof, all gone. Replaced by wild and whimsical ideas of dizzy heights, but possibilities which could rear themselves from under the carpet and work their magic. We will wait and see.
Monday 10 June 2013
Out of the comfort zone
Here we are in Mandurah, a get together with the HD group this morning was a great way to kick start our break. Ten pin bowling in Warwick with 20 people most with HD symptoms. We all had a good time and Merv being a regular bowler did well at 88 and Mel came in at 95. Me, well that's another story. Had a healthy sandwich for lunch and more coffee before heading out on the freeway. Beautiful winter weather, blue skies so warm no cardi needed. Just perfect. An hour later we roll up at the Mandurah Ocean Marina Chalets and unpack the car and settle into our disability unit. At 3pm we stroll over to Dophin Quay and had a quick look at the shops and find ourselves in a bag, jacket and jewellery shop. It is tiny with every inch used and the colours spill out and envelope us in its magic. I didn't want to leave without sharing some cash and bought some fabulous long green and pewter dangly earrings. Mel bought earrings and a black and silver chunky bangle. Looks great. After a walk around the quay we found Café Delight and ordered afternoon tea and soaked up the late afternoon sun.
But this isn't home, the bathroom is accessible but not with the home comforts we are used to. The bedroom floor is cold, there is no carpet and Merv's lift recliner chair is lonely at home. But saying all of that we are looking forward to the movies, to the zoo, to being explorers and having fun that doesn't always happen at home. So off we go, different is good to.
But this isn't home, the bathroom is accessible but not with the home comforts we are used to. The bedroom floor is cold, there is no carpet and Merv's lift recliner chair is lonely at home. But saying all of that we are looking forward to the movies, to the zoo, to being explorers and having fun that doesn't always happen at home. So off we go, different is good to.
Sunday 9 June 2013
In my dreams
When I was eight I was young and naïve, just a child with little experience of life. Inside of me burned the desire to write, the magic of words and language, a desire so much greater than an eight year old can understand.
What happened? Hmm, I wrote poetry and short stories, nothing published but each word and line I created from my inner being. Weaving magical webs to delight both my spirit and others.
This weeks I began 2 different Creative Writing courses, the first 10 weeks long at Tuart College and the 2nd only 4 weeks run by Helen a WA author and teacher with the Women Writers Club of WA. She was amazing, so much information in only 2 hours.
I don't suppose I am the first but I felt so inadequate. I have no written or finished novel, my language is no longer as magical or inspirational as I would like.
I am so grateful these 2 courses are going to be my punching bag, my inspiration, my journey to my destination. Let's wait and see.
What happened? Hmm, I wrote poetry and short stories, nothing published but each word and line I created from my inner being. Weaving magical webs to delight both my spirit and others.
This weeks I began 2 different Creative Writing courses, the first 10 weeks long at Tuart College and the 2nd only 4 weeks run by Helen a WA author and teacher with the Women Writers Club of WA. She was amazing, so much information in only 2 hours.
I don't suppose I am the first but I felt so inadequate. I have no written or finished novel, my language is no longer as magical or inspirational as I would like.
I am so grateful these 2 courses are going to be my punching bag, my inspiration, my journey to my destination. Let's wait and see.
Saturday 8 June 2013
All stressed out
Hmmm it's Saturday night and once again I'm at home instead of hitting the town or painting it red, green or grey. My head is full of what needs to go into the suitcase which will go into the car. How much luggage can we fit into the little Hyundai Accent? It's a small car with a small boot and leg room designed for a 6 year old. Yes the Chinese are small, they were in 2008 when we visited and probably still are. Small cars, small people, large country, millions of small people, all of them get hungry. Hmmm a lot of food for all those hungry small people. Maybe I will buy a Holden or the last Ford on the conveyor belt in 2016.
Back to packing. I have decanted liquids, creams and lotions from large and XLarge bottles to tiny pre loved vitamin containers, counted coffee and tea bags. Seriously thought whether I should pack the coffee pod maker or the glass scales. The scales won, Mel is on Weight Watchers. I will settle for strong coffee bags. I will be able to squeeze in the winter clothes, pj's, slippers, shoes, joggers and an extra large bag for our meds, flu tablets, Strepsils, gastro-aid, Oh and the fridge bag, not sure where I can fit it, but I cooked 3 Shepherd Pie meals for Monday night, in they will go along with the milk and fruit and whatever I can find to add to it.
Oh goodness, I will need a holiday to get over the holiday.
Back to packing. I have decanted liquids, creams and lotions from large and XLarge bottles to tiny pre loved vitamin containers, counted coffee and tea bags. Seriously thought whether I should pack the coffee pod maker or the glass scales. The scales won, Mel is on Weight Watchers. I will settle for strong coffee bags. I will be able to squeeze in the winter clothes, pj's, slippers, shoes, joggers and an extra large bag for our meds, flu tablets, Strepsils, gastro-aid, Oh and the fridge bag, not sure where I can fit it, but I cooked 3 Shepherd Pie meals for Monday night, in they will go along with the milk and fruit and whatever I can find to add to it.
Oh goodness, I will need a holiday to get over the holiday.
Friday 7 June 2013
Winter warmth and a happy daughter
Perth is the most amazing place on earth. It is winter and the day started off cold and chilly but by 10am I had already discarded my cardie and felt warm and comfortable in my old black T shirt and jeans. Mel had her hair trimmed early and looks fantastic. Being a person of habit I headed off to Barilli for my morning caffeine fix and then off to the bookshop. Next stop was the final assault on Mel's room. We allocated our jobs according to our particular gifting. Mine is to remove everything, throw away the rubbish, clean and replace suitable items. Mel's is mainly to decide what is missing and dig through the forbidden rubbish bag and retrieve her cherished treasures. I have learnt how to throw out her forbidden fruits when she is busy with the occasional clean up action. Sneaky and extra sneaky are the qualifications I could proudly display on my cleaning CV.
Mel's bedroom and kitchen cupboards have taken 7 weeks to complete and look similar to the display pages in Vogue. Well done I announced and off we went for a 30 minute walk in the glorious sunshine to celebrate. Not really Mel's idea of celebration, but all thoughts of food were kept only for a short Subway lunch. Weight Watchers is beginning to be an inspiration to us both.
Healthy food, glorious sunshine and a happy daughter, what else is there?
Mel's bedroom and kitchen cupboards have taken 7 weeks to complete and look similar to the display pages in Vogue. Well done I announced and off we went for a 30 minute walk in the glorious sunshine to celebrate. Not really Mel's idea of celebration, but all thoughts of food were kept only for a short Subway lunch. Weight Watchers is beginning to be an inspiration to us both.
Healthy food, glorious sunshine and a happy daughter, what else is there?
Wednesday 5 June 2013
On your marks, set, go....
I love going on holidays but I hate packing (and unpacking, especially the washing nightmare). We have booked 4 nights at the cost of 3 in Mandurah next week, accommodation all sorted and we are eager to go, come rain or shine. But, and there is always a but.... I am writing a list, and getting it right to ensure nothing of note is left behind. I have already started the list, not one but many and they will eventually be compiled as one, but not yet, I just jot as I think about things, mainly as I use things today which I know we will need.
I have already pointed out to Mel she can not take up every nook and cranny in the car with her stuff. Stuff is what Mel has plenty of. When she comes to spend the night she brings 4 bags, her laptop and cosmetic bag. Too many times we have discussed the necessity of 1 bag with essentials clothing and footwear but it continues to fall on deaf ears. Alas there is no point in fighting and the 4 bags plus continues. Next week it will be different, Merv and I have to get some stuff in our small car also. This will include basic groceries and dinner for Monday evening, refuse to go to the supermarket in Mandurah until Tuesday. We are already booked into bowling before we head down. The AHDWA is holding a free ten pin bowling morning with buy your own lunch. Merv being an avid bowler, yes we said we will attend with car already packed and then head down to Mandurah to start what hopefully will be a relaxing holiday. We will wait and see.
I have already pointed out to Mel she can not take up every nook and cranny in the car with her stuff. Stuff is what Mel has plenty of. When she comes to spend the night she brings 4 bags, her laptop and cosmetic bag. Too many times we have discussed the necessity of 1 bag with essentials clothing and footwear but it continues to fall on deaf ears. Alas there is no point in fighting and the 4 bags plus continues. Next week it will be different, Merv and I have to get some stuff in our small car also. This will include basic groceries and dinner for Monday evening, refuse to go to the supermarket in Mandurah until Tuesday. We are already booked into bowling before we head down. The AHDWA is holding a free ten pin bowling morning with buy your own lunch. Merv being an avid bowler, yes we said we will attend with car already packed and then head down to Mandurah to start what hopefully will be a relaxing holiday. We will wait and see.
Saturday 1 June 2013
Winter Blues
It was 18c in Perth today, the sun shone and the wind was from the Artic. So very cold, hardly felt warm all day. I turned on the heater, I turned off the heater when I finally got too hot, on, off, on, off. Mel and I walked twice today. I am trying to get her Weight Watchers motivated. In 9 weeks she has lost 3 kgs, most of the time she loses a kilo, she adds it again, loses it again and its a yo-yo journey. Mel is staying with me since she found out her HD news yesterday and she has been OK. Yesterday there were plenty of tears and heart wrenching pleas for understanding of her results. Today she is calm and cooperative. I am taking her journey with her one day at a time. Would have been better if the weather wasn't quite so chilly, a little warm would have been comforting. More news tomorrow.
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