Along with the damage outside there have been significant changes for Merv. Quite suddenly his body would lunge forward and his feet and legs balking and flapping like branches in a storm.
His sister who also has Huntington's has not had the same physical movements.
I emailed a video of him to his specialist and a week later we took the one hour drive up to Perth.
I asked if his specialist if he didn't give Merv meds to calm his body movements would he give me something instead! At least I hadn't lost my sense of humour.
Meds often take awhile to kick in. I wasn't surprised they took a few days and he changed from a kicking, lunging fanatic to a bent over always sleeping old man.
I shook my head; what is best? No neither of these. There must be an in-between solution.
Today there has been a reduction in Merv's meds and I now wonder if this will result in the answer we are seeking.
I hope so, I hate seeing him at the mercy of these meds which zap the life out of him.
No matter the circumstances we hang on to hope, to change to a better solution.
