Thursday 24 August 2017

Horror-spite

I was wearing thin around the edges and I felt Merv's week in respite would help us both. He's been in respite so many times in the last seven years it's almost a piece of cake getting him ready, packed and delivered!  On Monday he had a forty minute trip to his Physio appointment first  but all went well, even the rain decided to have a bit of a break!
All hell broke out when we returned home with less than an hour for lunch, toileting and getting Merv into the car.  I went to open his bedroom door only to find it locked from the inside,  I twisted the knob, I pulled it, it wasn't going to budge.  I found Allen keys, screw drivers, knives etc but nothing would release the lock,  finally I twisted the plate around the knob and used the screwdriver to remove the screws.  Off came the doorknob and a mighty push which exposed a hole in the door to the room beyond, but it was still locked fast!  On the metal bar which remained in the exposed hole was a little pin which I pushed.  Presto the door opened and a wave of relief swept through me.  Another trip to Bunnings for a new door knob without a lock is on my list now.
We arrived at the respite house all smiles and apprehension but soon the staff were in full swing with umpteen forms to be filled in and signed. All appeared to be going well.  I unpacked his suitcase and belongings at a leisurely pace and then realised to my horror I had forgotten his toothpaste.  Not just any toothpaste but the Biotene toothpaste for dry mouth.  A chemist only product!
Unfazed I said goodbye to Merv promising to return later with the toothpaste.  I trotted off to the shopping complex indulging myself with a variety of purchases.  I leisurely visited  many of the newly opened  shops,  I nagged myself to remember the toothpaste, yes I remembered!
It was almost dark before I returned to the respite house.  The carer in charge let me in and remarked Merv had not eaten his Baked Beans.  Baked Beans? I remarked,  Merv hates them and never ate them before becoming unwell.  I also questioned why he would be eating them on a Soft Food Diet as per his Care Plan and Swallowing Care Plan.  There was also an issue with him using a sipper cup which he shouldn't use.  The poor woman asked what she could feed him, I believe she finally gave him pureed fruit and custard.  I was devastated and wrote a long email to both Merv's Speech Pathologist and the Admissions Officer at the respite centre.
The next morning I received a call from the admissions nurse who assured me they would sort out his meals.  I rang at 4pm only to find they had nothing sorted for his evening meal.  Ok I said, I'll be there in 10 minutes with a tin of his favourite spaghetti and cheesecake, which I did.  I had hoped the carer in charge would take these items from me, but no I was encouraged to heat and serve his meal.  I  reported all of this to both Speech Pathologist and Admissions Nurse and Officer the next day.
By this time I was ropable.   I looked at the fortnightly menu the respite house had sent the Speech Pathologist and myself listing the food items Merv could eat and those he couldn't.
Again the next morning (day 3 of respite) another person rang and explained what they had put in place for Merv's meals.  She assured me I no longer had to supply meals.  I made sure she understood if I didn't hear back from her by 4pm I would be delivering pasta to him at 5pm.   I heard back.
Now I have a dilemma whether to let him stay there for the next time we have  booked respite for him being for two weeks block.
 I thought long and hard about it.  There is only one solution - to ask Merv if he enjoyed his stay and whether he would like to go back.  I'll do that on Monday when I pick him up.



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