We took Merv to the local Christmas pageant and fed him hot chips while we waited in the crowd for the floats and groups of little children in colourful costumes. We went to the amazing fireworks just across town. We went on a boat and marvelled at the colourful Christmas lights which adorned the many houses on the local canals.
The jingling of bells was far from my head when I decorated the house and put up our table top fibre optic tree. It looks nice in the lounge as it changes colours.
Then I stop and wonder if I'll be decorating what will be his room in the local care facility next year. Too difficult to think about him not being here during the busy festive season, even though he would join us at home regularly and of course Christmas Day but it will never be the same.
I remember one of the counsellors telling us to imagine now what is ahead. Imagine now what it will be like next Christmas without him living him. I let my imagination go there, decide it's way too hard and return to the here and now.
What else can I do to give Merv wonderful Christmas memories? On Saturday night we're looking forward to our local Christmas dinner with entertainment. I'm not paying for Merv's ticket as I need to take his dinner with us, even his dessert, it's the being there which is important, not so much the food. On Monday night there is a Carols singalong across the road. I was told the couple have been doing this for years. They decorate their garage with Christmas characters and lights, Carols are sung and Santa calls in for a surprise visit!
Dustin and Grace are coming for Christmas Day. More wonderful memories for Merv to store away.
Huntington's Disease is a degenerative brain disease but Merv will remember.
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| Canal cruise to see the Christmas Lights |
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| Merv enjoying the canal cruise |
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| local fireworks |
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| Santa at the pageant |
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