Friday, 8 June 2018

Weathering The Storm

The storms have embraced Perth twice in a week.  The cold fronts have caused heavy rains and destruction. Trees have been uprooted, roofs and fences damaged and heaters and fires lit to high light this dramatic change in our weather.
Along with the damage outside there have been significant changes for Merv.  Quite suddenly his body would lunge forward and his feet and legs balking and flapping like branches in a storm.
His sister who also has Huntington's has not had the same physical movements.
I emailed a video of him to his specialist and a week later we took the one hour drive up to Perth.
I asked if his specialist if he didn't give Merv meds to calm his body movements would he give me something instead!  At least I hadn't lost my sense of humour.
Meds often take awhile to kick in.  I wasn't surprised they took a few days and he changed from a kicking, lunging fanatic to a bent over always sleeping old man.
I shook my head; what is best?  No neither of these. There must be an in-between solution.
Today there has been a reduction in Merv's meds and I now wonder if this will result in the answer we are seeking.
I hope so, I hate seeing him at the mercy of these meds which zap the life out of him.
No matter the circumstances we hang on to hope, to change to a better solution.


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